Organizations
Leukemia & Lymphoma Society; 888-557-7177 Leukemia & Lymphoma Society (LLC) is the largest voluntary health organization dedicated to funding research, finding cures and ensuring access to treatments for blood cancer patients. Its mission is to cure lymphoma and other cancers and improve the quality of life of patients and their families. American Cancer Society; 800-227-2345 American Cancer Society offers resources, news, and online support groups for a range of lymphomas, including Hodgkin lymphoma, non-Hodgkin lymphoma, lymphoma of the skin, and Waldenstrom macroglobulinemia. Lymphoma Research Foundation; 800-500-9976 The mission of Lymphoma Research Foundation (LRF) is to improve care through education, research, and support services. They aim to eradicate lymphomas and serve all those affected by this type of blood cancer. Lymphoma Information Lymphoma Information provides information, stories, and news related to the latest updates in lymphoma. It also has support services, information about clinical trials, and patient blogs about lymphoma. MyLifeLine Cancer Foundation; 888- 793-9355 After a recent merge with Cancer Support Community, MyLifeLine seeks to empower cancer patients and caregivers to build an online support community of family and friends to foster connection, inspiration, and healing through free, personalized websites.
Financial Assistance
Cancer Care; 866-552-6729 Cancer Care offers limited financial and copay assistance, as well as the option of having a professional oncologist social worker find you additional resources. They have an online database to help you find doctors and a range of assistance. My Good Days; 877-968-7233 My Good Days helps patients with a chronic medical condition get access to medication. In addition, they assist with reimbursing copays, transportation, and lodging. PAN Foundation; 866-316-7263 Patient Access Network (PAN) Foundation is an independent nonprofit organization that seeks to help federally and commercially insured people with chronic or life-threatening diseases with some costs of their prescription medications. Patient Services Inc.; 800-366-7741 Patient Services Inc. helps patients with chronic conditions find solutions within their healthcare plans in addition to coverage with copayments and related expenses. Patient Advocate Foundation; 800- 532-5274 Patient Advocate Foundation (PAF) offers a program of scholarships for survivors who have excelled despite their diseases. Additionally, PAF financial assistance such as grants and copay refunds. Healthwell Foundation; 800-675-8416 Provides financial assistance to eligible individuals for coinsurance, copayments, healthcare premiums and deductibles for certain medications and therapies. Memorial Sloan Kettering Cancer Center; 800-525-2225 This organization has dedicated more than 130 years to patient care, innovative research, and educational and support programs for patients. Children’s Cancer Research Fund Conducts research and provides funding for the latest research on lymphomas in children. Also offers family support services and advocates for childhood cancer education and awareness.
Coping, Advocacy, and Support
Cancer ; 800-813-HOPE ext. 4673. Cancer Care offers free online, telephone, and face-to-face services for those with lymphoma and a range of cancers. Their services range from individual counseling to support in groups. MyLifeLine; 888-793-9355 MyLifeLine offers a practical list of support groups, as well as other resources such as a caregiver toolkit, financial assistance, side-effect management tips, and a cancer resources directory. Lymphoma Research Foundation; 800-500-9976 A community support network of more than 6,000 patients, survivors, and caregivers for lymphoma. My Lymphoma Team A social network to connect with others and find support among a community of people who have been diagnosed with lymphoma.
Facts and Statistics
Leukemia and Lymphoma Society Cancer.netAmerican Cancer SocietyCenters for Disease Control and Prevention
Medications and Therapies
Doxorubicin (Adriamycin, hydroxydoxorubicin)Bleomycin (Blenoxane)Vinblastine (Velban, Oncovin)Dacarbazine (DTIC-Dome)Etoposide (Etopophos, Toposar, VePesid, VP-16)Cyclophosphamide (Cytoxan)Procarbazine (Matulane)Prednisone (Rayos, Prednisone Intensol)Mechlorethamine (Mustargen)Chlorambucil (Leukeran)Bendamustine (Treanda)Ifosfamide (Ifex)Dexamethasone (Decadron)Carboplatin (Paraplatin)Cisplatin (Platinol)Oxaliplatin (Eloxatin)Cladribine (2-CdA, Leustatin)Fludarabine (Fludera)Pentostatin (Nipent)Capecitabine (Xeloda)Cytarabine (ara-C)Gemcitabine (Gemzar)Methotrexate (Trexall)Pralatrexate (Folotyn)
Alternative Therapies
Cancer Treatment Centers of America Proton Beam Therapy Program New Hope Unlimited Treatment Issels Immuno-OncologyNational Center for Complementary and Integrative Health
Patient and Community Blogs
Hannah Dunne A patient blog by a woman who battled Hodgkin lymphoma and is now cancer-free. Weill Cornell Medicine A medical blog that offers the latest updates and initiatives for those looking for information or resources about lymphoma. Rounding 30 With updates on his life experience over the past 40 years, Matt Paolelli documents his fight with Hodgkin lymphoma. Healthy Survivors Dr. Wendy Harpham weighs in on survivor cases to outline what it looks like to be a healthy lymphoma survivor and what helps you heal.
Clinical Trials
Weill Cornell Medicine A helpful description about the clinical trial process and what to expect. Lymphoma Research Foundation A fact sheet to help you understand the process of participating in clinical trials. Jason Carter Clinical Trials Helps patients find clinical trials for a range of blood cancers and disorders. Leukemia and Lymphoma Society Clinical trial information for Hodgkin lymphoma, non-Hodgkin lymphoma, and child non-Hodgkin lymphoma. Memorial Sloan Kettering Cancer Center The MSKCC Lymphoma Service has one of the largest and most innovative clinical trial programs in the world. They offer a diverse range of treatment options for patients with Hodgkin and non-Hodgkin lymphoma.
